Links & Resources

 

   

This page is intended to provide information about support groups, hospitals, health resources and any other helpful resources of information that might assist you.

Alzheimer's Association

The Alzheimer's Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease by advancing of research; enhancing care and support for all affected; and reducing the risk of dementia through promoting brain health education. Our vision is a world without Alzheimer's. For more information about resources in your community or personal support from professionals who understand the disease and its impact, call us toll-free, day or night.

website: http://www.alz.org

email: info@alz.org

phone: 800.272.3900


American Academy of Clinical Neuropsychology (AACN)

The AACN can help you locate a board-certified neuropsychologist in your area.

website: http://theaacn.org/

email: linas@umich.edu

phone: (734) 936-8269


American Board of Pediatric Neuropsychology (ABPdN)

What Is The ABPdN? The American Board of Pediatric Neuropsychology (ABPdN) is responsible for establishing the criteria relating to the definition, education, training, competencies, and the examination procedures leading to certification as a specialist in pediatric neuropsychology. Locate a board-certified pediatric neuropsychologist in your area.

website: http://abpdn.org

email:

phone: 602-412-3529


American Brain Tumor Association

The American Brain Tumor Association (ABTA) is a not-for-profit, independent organization. Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada. Founded in 1973 out of a desperate need, the American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.

website: http://www.abta.org

email: info@abta.org

phone: 847-827-9910


American Lung Association

The American Lung Association is the nation's oldest voluntary public health organization. Originally founded to combat the spread of tuberculosis -- the white plague -- the Lung Association now pursues a vision of a world free of all lung disease. We work to prevent lung disease and promote lung health with research for cures, advocacy to improve air quality and education to help sufferers and caregivers manage their chronic lung diseases, including chronic obstructive pulmonary diseases such as asthma, emphysema and chronic bronchitis. Working through volunteers and staff nationwide we are "Improving life, one breath at at time".

website: http://www.lungusa.org

email:

phone: 800-586-4872


American Psychological Association

The American Psychological Association (APA), located in Washington, D.C., is the largest scientific and professional organization representing psychology in the United States. Its membership includes more than 150,000 researchers, educators, clinicians, consultants, and students. APA works to advance psychology as a science and profession and as a means of promoting health, education, and human welfare.

website: http://www.apahelpcenter.org

email: helping@apa.org

phone:


American Psychological Oncology Society Referral Line

APOS offers a Toll-Free HELPLINE ~ a national resource provided to help people with cancer and their caregivers find counseling services in their own communities.

website: http://www.apos-society.org/survivors/helpline/helpline.aspx

email:

phone: 866-276-7443


Aplastic Anemia & MDS International Foundation, Inc.

The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. Our services are free. Contact us at AA&MDSIF, P.O. Box 613, Annapolis Maryland 21404-0163

website: http://www.aamds.org

email: help@aamds.org

phone: 800.747.2820


ARCH National Respite Network

The ARCH program was begun in the early 1990s with funding from the Children's Bureau in the US Department of Health and Human Services to support a national network of federally funded respite and crisis care programs for children with disabilities, chronic illness and at risk of abuse and neglect. During its tenure as a national resource center, ARCH staff developed an array of resources for families and respite providers, including the national respite locator service, guides for starting respite programs in communities, and fact sheets on a variety of topics related to respite and crisis care not only for children and their families but also for families who are caring for the elderly. When federal funding was no longer available, ARCH continued to make these resources available with the support of several hundred members of the ARCH National Respite Network who contribute to the organization each year.

website: http://www.archrespite.org/index.htm

email: mmathers@chtop.org

phone: (919) 490-5577


BMT Infonet

Blood & Marrow Transplant Information Network is dedicated to providing transplant patients and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell, and cord blood transplants. Since 1990, our networks of medical experts and transplant survivors have helped more than 100,000 transplant patients cope with the prospect of a blood stem cell transplant. Our goal is to empower patients with credible information and emotional support, so that they can take a more active role in decisions affecting their health and treatment options.

website: http://www.BMTInfoNet.org

email: help@BMTInfoNet.org

phone: (888) 597-7674


Brain Tumor Society

The Brain Tumor Society's vision is a world without brain tumors. We support brain tumor patients, survivors and their caregivers by providing access to supportive services and informational resources. Our social worker responds to individual inquiries and coordinates one-on-one peer networking through our Connection Of Personal Experiences (COPE) Program. We provide free informational materials to all those affected by a brain tumor diagnosis. We fund carefully-selected scientific research to enhance treatments and, ultimately, to find a cure. Our mantra is: There is Hope. There will be a Cure.

website: http://www.tbts.org

email: info@tbts.org

phone: 800.770.TBTS (8287)


Cancer Hope Network

Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families. We provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience. Through this matching process, we strive to provide support and hope, to help patients and family members look beyond the diagnosis, cope with treatment, and start living life to its fullest once again. In short, we strive to make a difference in their fight against cancer.

website: http://cancerhopenetwork.org

email: info@cancerhopenetwork.org

phone: (877) 467-3638


Change of Heart Support

Heart Transplant Support We are a Non-Profit, Non-Denominational Organization yet spiritually led. The group is open to heart transplant recipients, their caregivers, family members, anyone awaiting a heart transplant, any organ donor family. Change of Heart is inspired and awe stricken by the unselfish act of organ donors and their families. We can only respond to their gift as a "Miracle of Life, a Second Chance." It is our given responsibility to take care of that organ after transplant.

website: http://www.changeofheartsupport.com/

email: DYoungRSID@aol.com

phone: (513) 523-8709


MD Anderson Cancer Center (University of Texas)

At M. D. Anderson Cancer Center, our mission is simple – to eliminate cancer. Achieving that goal begins with integrated programs in cancer treatment, clinical trials, education programs and cancer prevention. To us, people are more than just their cancer symptoms. Compassion – along with innovative cancer treatments, cutting-edge cancer research, comprehensive education and research-based prevention of both common and rare cancers – has earned the gratitude of countless adult and pediatric cancer patients and their families. M. D. Anderson Cancer Center: life-saving, life-changing care, since 1941.

website: http://www.mdanderson.org

email:

phone: 800-392-1611


National Institute of Neurological Disorders and Stroke

The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

website: http://www.ninds.nih.gov/

email:

phone:


Plastic Surgery San Diego

Offering a variety of surgical and non-surgical procedures for your face, breast, body, and skin at a state-of-the-art facility in beautiful San Diego.

website: http://www.ManchesterClinic.com

email:

phone:


Pre-Paid Legal Services, Inc.

Protect yourself from identity theft. With the Identity Theft Shield and a Pre-Paid Legal membership, you have a plan when/if your identity is stolen.

website: http://www.prepaidlegal.com/idt/arlenebean

email: ambean41@rconnects.com

phone: 702-346-9186 (msg)


R.A. Bloch Cancer Foundation

The Cancer Hot Line consists of a group of individuals who have had cancer who are available to talk with newly diagnosed cancer patients, promptly upon diagnosis.

website: http://www.blochcancer.org/

email:

phone: 816-854-5050


The ALS Association

The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases - research, patient and community services, public education, and advocacy - in providing help and hope to those facing the disease. The mission of The ALS Association (ALSA) is to find a cure for and improve living with amyotrophic lateral sclerosis.

website: http://www.alsa.org

email:

phone: (818) 880-9007


The Leukemia & Lymphoma Society - Greater Sacramento Area Chapter

The Leukemia & Lymphoma Society is the world’s largest private organization concerned solely with funding research toward cures for blood cancers such as leukemia, lymphoma, and myeloma, and improving the quality of life of patients and their families.

website: http://www.lls.org/hm_lls

email:

phone: 916.348.1793


UCSF Medical Center

UCSF Medical Center and UCSF Children's Hospital are recognized as world leaders in health care, known for innovative medicine, advanced technology and compassionate care. For more than a century, we have offered the highest quality medical treatment. Today, our expertise covers virtually all conditions, including cancer, heart disease, infertility, neurological disorders, organ transplantation and orthopedics as well as special services for women and children.

website: http://www.ucsfhealth.org

email:

phone: (415) 476-1000


 


   
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